This scientific consortium endeavors to establish a repository of high quality research-ready Covid-19 patient data from participating hospitals for the purpose of collaborative research. The types of research to be conducted on the data will include disease phenotypes, clinical course and health outcomes during the acute phase as well as longitudinally. Various aspects of patient care, treatments, drug response (and adverse reactions), risk factors, diagnostics, vaccines, epidemiology, artificial intelligence/machine learning on the data and many other topics will also be pursued by consortium researchers and scientists. The results, hopefully, will improve public health, medical knowledge and practice, and healthcare for all Filipinos specifically with regard to Covid-19.
The consortium's data is entrusted to the Center for Informatics (CFI), with its governance that abides by the highest principles of data stewardship (see here). Currently, the CFI is laying the foundations for the informatics infrastructure required, alongside the research program and data practices to be adopted by the consortium. Major hospitals in Luzon have committed to consortium membership and exploratory discussions, while hospitals in the Visayas and Mindanao are currently being recruited. Ultimately, the more hospitals that participate, the more complete, powered and better the data, and more collaborative research can be performed.
COVID-19 Patient Registry on REDCap
The consortium's data is entrusted to the Center for Informatics (CFI), with its governance that abides by the highest principles of data stewardship (see here). Currently, the CFI is laying the foundations for the informatics infrastructure required, alongside the research program and data practices to be adopted by the consortium. Major hospitals in Luzon have committed to consortium membership and exploratory discussions, while hospitals in the Visayas and Mindanao are currently being recruited. Ultimately, the more hospitals that participate, the more complete, powered and better the data, and more collaborative research can be performed.
COVID-19 Patient Registry on REDCap
COVID-19 Patient Registry on REDCap
The COVID-19 Patient Data Consortium for Research, or COVID Patient Registry (CPR), is a centralized repository for COVID-19 patient data that is a research resource intended for the study of COVID-19 disease and its sequelae among Filipinos. The registry has a universally applicable format to allow data aggregation and interoperability across research institutions and health facilities to promote research collaboration and data sharing, and accelerate discovery and technological advances in healthcare.
The Consortium is currently composed of the University of San Agustin - Center for Informatics (USA-CFI) as the data steward, National Center for Mental Health (NCMH), Makati Medical Center (MMC), The Medical City (TMC) Group of Hospitals, Lung Center of the Philippines (LCP), Philippine General Hospital (PGH), and Visayas and Mindanao hospitals as data contributors.
If successful, the COVID-19 Patient Registry (CPR) will provide the growing need for high quality research-ready data on COVID-19 patients in the Philippines. Scientists and researchers will utilize the data for research on disease phenotypes, clinical course, risk factors, patient care, treatment/drug response, diagnostics, vaccines, health outcomes, AI/ML, and many other topics.
If successful, the COVID-19 Patient Registry (CPR) will provide the growing need for high quality research-ready data on COVID-19 patients in the Philippines. Scientists and researchers will utilize the data for research on disease phenotypes, clinical course, risk factors, patient care, treatment/drug response, diagnostics, vaccines, health outcomes, AI/ML, and many other topics.
The data governance document will serve as guide for the planning and implementation of all data-related activities of the consortium. A CPR Information Packet is also publicly available for viewing of Philippine hospitals that are interested in contributing their patient data and joining the COVID-19 patient data consortium.